Prader-Willi syndrome (PWS) is a complex, lifelong genetic condition causing insatiable hunger alongside hormonal, behavioural, mental health, sleep and orthopaedic challenges. With no cure and very minimal treatment options, families face a lifetime of uncertainty. We’re funding vital research to improve understanding, develop new treatments and create a brighter future for everyone affected by PWS.

Our team all have deep personal connections to PWS, so we understand the fear, uncertainty and urgency families face. We fund vital research, support clinical trials and Researchers, advocate for better treatments and raise awareness to accelerate progress. Our goal is to create a different future from the one families face at diagnosis, with more treatment options, better health and greater independence in adulthood.