Each year thousands of families in the UK are told that their child is so seriously ill that they may die. Families must juggle hospital appointments, medication, work and caring for siblings, all while trying to cope with the fear of their child’s condition. Many parents must leave their jobs, losing their financial security and their sense of self. Demand for Rainbow Trust’s support is growing as more and more children are diagnosed with a life threatening condition.

Rainbow Trust provides families with a dedicated Family Support Worker who offers consistent practical and emotional support, tailored to each family’s needs. This may include helping parents manage hospital appointments, supporting siblings and providing emotional support and respite. Support is provided from diagnosis, through treatment and into bereavement when required, for as long as needed. This reduces isolation, eases pressure on families and helps parents to focus on their child.