We’re raising £40,000 to fund a research project investigating the crushing exhaustion people with ME face after activity. This study will uncover what goes wrong in their muscles during Post-Exertional Malaise; bringing us closer to diagnosis, understanding, and hope for treatment.
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There are over 400,000 people in the UK with ME. Years of misdiagnosis and poor treatment have led to severe illness, and sadly, sometimes death. People with ME/CFS often get much worse after mild activity — a symptom called Post-Exertional Malaise (PEM). We still don’t fully understand why, and there are no treatments. People with ME live in fear of mild exercise that could put them in hospital.
This funding will directly support a 12-month case-control study led by world-leading researchers at Oxford. It will investigate a what happens in the muscles during PEM. We will test subjects with using MRI and use Near-Infrared Spectroscopy (NIRS). This state of the art technology will give an insight into cell energy. This could benefit hundreds of thousands of people in the UK, and millions worldwide who live with ME/CFS and lead to a simple, easy method of recognising the condition.
