The Ehlers-Danlos Society advances research, education, and care for those with EDS and HSD worldwide—striving for a future where everyone has access to the right treatment and support, at the right time, for their individual needs.
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Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD) are underdiagnosed, poorly understood, and lack effective treatments. Individuals often face years of misdiagnosis, inadequate care, and significant physical and emotional distress. We aim to address the urgent need for awareness, education, research, and support to improve the quality of life and outcomes for people living with these complex conditions worldwide.
The Ehlers-Danlos Society drives global research, educates medical professionals, and empowers patients through resources, advocacy, and support. We fund research to uncover the biology of EDS and HSD, improve diagnostic pathways, and promote equitable care. We collaborate with experts, communities, and organizations to increase understanding, reduce delays in diagnosis, and advance treatment and care for all affected.
