We are fundraising to be able to organise family events for children & their families affected by MPS, Fabry or a related condition. We bring families together for special days filled with fun, connection, and lasting memories during challenging times.
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Beneficiaries
Families affected by rare diseases often feel isolated, with few chances to connect with others who understand their journey. Children, siblings, and parents can struggle with emotional and social challenges. This project creates safe, joyful spaces where families can meet, share, and relax—while children enjoy fun activities and siblings get the attention and break they need. Our support team is also there to listen, guide, and connect.
We organise family events that offer fun, connection, and emotional support in a safe, understanding environment. Children enjoy inclusive activities, siblings get a chance to relax and play, and parents can meet others facing similar challenges. Our support team is present at every event to offer advice, a listening ear, and help build a strong, caring community for families living with rare diseases.