We work to improve the lives of all people affected by ME – including adults, children, carers and their loved ones. We deliver services to meet the care and support needs of those affected and also enhance understanding of ME through research, education and campaigning.
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Beneficiaries
There are at least 404,000 people with ME in the UK, and a further 950,000 people with long covid living with ME-like symptoms. There is still no test, no effective treatments and no cure for ME, and research remains poorly funded by the UK government. 1 in 4 people with ME are so severely affected they are house-bound and often bed-bound. Many live with isolation and financial insecurity, alongside their debilitating symptoms. People with ME desperately need more support and more research.
We believe that change won’t just happen; it must be made. We help people affected by ME today through our helpline/email support, advocacy service and projects to reduce the isolation experienced by adults and children with ME. Our ME-informed healthcare services, including Doctors, ensure people with ME can access expert healthcare. We also work towards a brighter future for people with ME: educating professionals, investing in research to learn more about ME and campaigning for change.
