PANS or PANDAS are devastating neuro-psychiatric conditions affecting children and young people. PANS PANDAS UK are the only charity providing information and support in the UK. With your help, we can provide essential resources and ensure no-one faces PANS or PANDAS alone.
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PANS or PANDAS occur suddenly and can cause an array of symptoms, including OCD, eating restrictions, behavioural and cognitive changes, anxiety and depression. But awareness by health professionals is low, and without NHS guidelines, families face a postcode lottery for prompt assessment, diagnosis, and treatment, leaving many to suffer in silence.
We strive to ensure no one faces PANS or PANDAS alone. We listen to our families. They've told us they need accessible resources for self-advocacy, connection to combat isolation, direct support/advice, and more training for professionals so they understand the impact of living with PANS or PANDAS. Families First will enable us to provide families with more accessible information in various formats and to launch a dedicated email support line, where parents/carers can access guidance & resources.