Ataxia-Telangiectasia (A-T) is a condition which affects children and young adults. Babies are born 'normal' and then slowly from 4 they begin to lose their independence often needing a wheelchair by 7 and a feeding tube by age 12. People with the condition have very weak immune systems and often die in their teens or early twenties of cancer or a severe respiratory infection. There is currently no cure for this condition, no treatment and no way to halt the progression.

Action for A-T is working with researchers globally to advance understanding and knowledge of A-T with the aim of finding a treatment or potential therapy to make a difference to lives of people with A-T. These are more promising times for A-T children but research only moves as fast as funds will allow. We have invested £5.7 million in new research projects since 2012 and created a pipeline of promising new research projects that will begin as soon as funding is secured.