Living with Addison’s disease or adrenal insufficiency can be isolating, but connection makes all the difference. This Small Charity Week, every donation is doubled through the Big Give, helping us fund a member get-together. These events provide vital support, friendship and education.
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Addison’s disease and adrenal insufficiency are rare, lifelong conditions, and many of those diagnosed feel isolated, with limited opportunities to meet others who truly understand. Our members frequently tell us they wish we could travel more across the UK to connect with others in different regions. Peer support is crucial for managing this complex, life-threatening condition, but without sufficient funding, we have been unable to reach as many people as we would like.
With funds raised and Big Give matching, we will organise another member get-together in 2026, providing a safe space for our community to connect. In 2025, we already have two events planned, 26 April in Birmingham and 8 August in Newcastle, but we want to expand these opportunities. These events will feature small group discussions, access to healthcare professionals, and practical skills training, such as emergency injection training, which could be life-saving.
