Building community for those with rare disease (OA/TOF) and raising money for a charity that, in our members’ words ‘we couldn’t manage without’. Campaign has three key objectives: Bring members together and remove isolation; Encourage members to be outdoors in nature; Support mental health.
Categories
Beneficiaries
Situation
Our charity is addressing the isolation that OA/TOF brings. A membership survey showed that 77% of respondents said they wouldn't be able to manage if TOFS didn't exist to help with day-to-day practical problems and emotional challenges of having a child born unable to swallow. TOFS builds community, reduces isolation, helps parents support children for improved family lives and better long term outcomes. Adults born with OA/TOF are empowered to seek the best care and improve their health.
Solution
We connect the community via a lived-experience volunteer network. We facilitate peer to peer support via local and online meet ups and events. We run two online groups for instant support. We educate and empower by facilitating online and in person Q&As with relevant health professionals. Educated, informed and empowered families and adults are more able to embrace life and have better outcomes which contributes to our mission that those born with OA/TOF should live their lives unlimited.