At least 21 people with epilepsy die each week in the UK and most are young and otherwise in good health. We know that at least 40% of these deaths are preventable. Epilepsy is often a neglected service within the NHS compared with other chronic NHS services / conditions, despite neurology being the leading cause of disability and ill-health.

At SUDEP Action, we focus our efforts on the priorities that bereaved families tell us are important. There are five key strands to our work: • Providing information on SUDEP and risk in epilepsy • Offering support when someone has died • Involving people to help effect change • Sponsoring research and education to prevent future deaths • Capturing data across the UK & internationally through the Epilepsy Deaths Register.