400,000 adults and children in the UK live with lymphoedema/Lymphedema. There is little support or understanding of this incurable condition often caused by cancer treatment, genetic abnormalities or infection. We provide information and support to help people live their best lives with lymphoedema
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Imagine being told you have an incurable condition affecting how you look, the clothes you wear, the job you do, how you feel about yourself and how others view you. Discomfort, swelling, fatigue, increased risk of infection and skin changes will be a part of your life for ever. Yet nobody has heard of it. Even your GP has little idea of how to treat it. Now imagine there was nowhere to go for support, information and advice. The LSN is there educating, supporting and enabling but more is needed
The LSN provides information to those living with lymphoedema about every aspect of life with the condition to promote self management. We need to reach more people. With greater awareness will come greater understanding. We need to inform the public. With greater knowledge among healthcare professionals will come faster diagnosis and commencement of appropriate treatment. We need to educate. Isolation and sadness often accompany lymphoedema. We need to be where people are.