Receiving a diagnosis of epilepsy can come as a shock, leaving families feeling frightened, lonely and overwhelmed. Children and young people need help and support understanding their new diagnosis and how it will impact their lives. Help provide the support children need when they need it most.
Categories
Beneficiaries
Situation
Around 8,500 children and young people are diagnosed with epilepsy each year in the UK. Receiving an epilepsy diagnosis can be frightening, isolating and overwhelming. Children and young people need help and support understanding their new diagnosis and how it will impact their lives. They have told us that a key barrier they face is a lack of information following a diagnosis of epilepsy. This can lead to fear, worry and anger and severely affect coming to terms with their diagnosis.
Solution
Trusted information and guidance are essential for newly diagnosed children, young people and their families. We’ll work directly with them to design and implement the resources they say they need most in the most user-friendly formats. This will provide a lifeline of vital, relevant and timely support with bite-sized information about epilepsy, diagnosis and living with the condition. They will help to support self-management and confidence, reducing the fear a diagnosis can bring.
