This campaign has now closed
There has never been a better time for ataxia research and treatments with three drugs on the horizon and others in the research pipeline. This campaign aims to support our efforts in making these drugs available in the UK ASAP, whilst enabling us to continue providing support to the community.
Categories
Beneficiaries
Situation
Ataxia is an umbrella term for a group of rare and progressive neurological conditions. It affects coordination, balance, movement & the muscles used for speech and vision. There is no cure. But there is hope! We are closer than ever to seeing treatments for ataxia in the UK with one already approved in the EU and US and others are close to being ready for approval. But there are barriers with bringing these to the UK which, with your help, we are working to overcome.
Solution
We are in a unique moment of ataxia history with the treatment pipeline fuller than ever. One drug is approved for use in the US & EU, two are in the approval process and four more are in Phase 2 trials. We MUST seize this key moment. Your support can help us work with pharmaceutical companies and government agencies to bring these drugs to the UK, encourage further research, & support the community while awaiting these treatments and cures.