This campaign has now closed
People with ME/CFS face ignorance and indifference. For 43 years, we’ve helped them achieve better health by giving information about early diagnosis, good management, belief and support. We want to extend this support to thousands more with Long Covid who are now being re-diagnosed with ME/CFS.
Categories
Beneficiaries
Situation
People with ME/CFS can be hard to reach and often too sick to advocate on their own behalf. Many have retreated from routine contact with healthcare, even with their own GPs. Too little knowledge shared between the ME/CFS and Long Covid communities. This is unfortunate as in many cases there is a lot of overlap between ME/CFS and LC symptoms, with many people with LC now being diagnosed as post-Covid ME/CFS. Where symptoms are the same, we can do a great deal to help those with LC.
Solution
We have unrivalled capacity to support people with ME/CFS through every stage of their illness and to share our expertise by helping people self-manage their condition in the Long Covid community, which arguably is eight times bigger than our own. Our library of leaflets, 24/7 helpline and a network of highly skilled and understanding health and care professionals, including our own medical advisers, are second to none. We want to make sure that the UK as a whole gets best value from them.
