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Help us continue to create lasting memories for children and young people with Juvenile Huntington’s disease, along with their families and carers, at our annual JHD residential weekend.
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Beneficiaries
Situation
Juvenile Huntington’s disease (JHD) is a form of Huntington’s; a genetic, life-limiting disease which presents in motor, cognitive and psychiatric symptoms. Juvenile Huntington’s disease refers to anyone who develops these signs or symptoms before they are 20 years old. As the disease affects less than 100 families in England and Wales, many families impacted by JHD have never met others like them. This can lead to feelings of loneliness and isolation, and reduces opportunities for peer support.
Solution
Our annual three-day residential JHD family weekend provides a unique opportunity for children and young people with JHD to come together for a weekend of fun, where they don’t have to explain their illness to anyone. Along with parents and siblings, they are able to participate in outdoor activities together as a family and form new friendships. The JHD weekend takes place at The Calvert Trust, which facilitates activities such as swimming, canoeing and rock-climbing; all in an accessible way.
