Inherited retinal conditions cause progressive and unpredictable loss of sight. This is hugely distressing for the individuals and families affected, and can lead to anxiety, depression, social isolation and loss of confidence. In 2019 the very first treatment became available on the NHS. However, only around 90 people in the UK are eligible for this (out of more than 25,000 affected), as it targets one specific gene out of more than 280 identified as causing inherited retinal conditions.

Retina UK has spent 45 years funding the most promising medical research into inherited retinal conditions. We are thrilled that the very first treatment has now become available and is benefitting those who have received it. We believe that now is the time to drive forwards and invest as much as possible into research that will lead to treatments suitable for many more people living with these distressing conditions. Gene therapy, stem cell therapy and drug repurposing all show promise.