We have an excellent book called CMT: A Practical Guide, which gives information on every aspect of living with Charcot-Marie-Tooth disease. This book is now 6 years old, and we'd like to update it, upgrade it, and generally it accessible for even more people.
Categories
Lack of knowledge - as simple as that! Many people who have CMT don't know how to manage it, the best techniques and feel isolated by this lack. Additionally, the book is also an excellent resource for people caring for those affected - family and professionals.
By providing this information in an accessible range of media, we will be able to promote this resource to the widest number of people possible. We aim to publish the book on paper, as a .pdf download from our website, and as a Kindle book through Amazo