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The Huntington’s Disease Association (HDA) is the only organisation providing a dedicated service of advice, guidance and support for people in England and Wales who are devastated by Huntington’s disease. We run a regional Specialist HD Advisory service to support those directly affected by the di
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Situation
There are approx 6,000 people suffering from Huntington’s in the UK. For every person diagnosed another four people are at risk. That’s 24,000 people whose lives will, at some point, be turned upside down by the anguish of waiting for a diagnosis, or taking their chances without. These people are referred to as ‘at risk’ and may exhibit early signs of HD, such as slight uncontrollable muscular movements, stumbling and clumsiness, lack of concentration, short term memory lapses
Solution
Our HD Advisers are a vital lifeline helping HD sufferers to navigate the complex care, health and emotional needs of the condition. Our advisers provide practical information, give advice and emotional support to families, identify local services, coordinate the organisation of care packages and answer crisis calls. Our aim is to ensure that individuals living with HD receive the best possible care at home, to help families stay together for as long as possible.