PSP is a terminal disease which destroys nerve cells in the brain. There is no treatment and no cure. Anyone receiving a diagnosis of PSP will be devastated, and will be very anxious about their future and how the disease will affect their lives. In a busy clinic, a neurologist simply doesn’t have the time to discuss this with the patient, or to advise them on how they can best manage their symptoms. So a number of consultants have approached The PSP Association, to provide extra support.

One of our PSP Specialist Care Advisers attends the clinic to advise on the day to day management of the disease, recommend suitable therapies, and provide counselling. They can offer immediate support from the moment of diagnosis, and can speak with patients and carers privately to discuss their concerns.