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To establish a Centre of Excellence for ME that will facilitate clinical diagnosis and examinations, and translational biomedical research, and facilities to improve training of healthcare staff. This would act as a European hub for high-quality research into ME.
Categories
Beneficiaries
Situation
People with ME need early and correct diagnosis, and fundamental research. The current status of services for people with ME and their families in the UK is poor with little knowledge or funding of current biomedical research and possible treatments being made available to patients or healthcare staff. This affects especially the young and severely affected, a group consisting of 25% of the ME patient population. The severely affected ME patients are mostly ignored by healthcare services
Solution
The Centre would facilitate correct examinations using modern diagnostic and clinical protocols. Follow-up examinations would provide all patients with a service/possible treatments. The Centre would perform translational biomedical research into ME using state-of-the-art research techniques and apply results from research more swiftly to patients. The Centre would be a UK/European hub for research. By locating in a research park then all facilities are already available.