This campaign has now closed
Last year our Helpdesk responded to 4,000 queries. We offered them support & guidance about Tourette’s, a complex neurological condition for which there is no cure & no standardised treatment or clinical support. Urgent funding is needed to provide this vital service, which is a lifeline for many.
Categories
Beneficiaries
Situation
Tourette’s is a widely misunderstood & stigmatised condition for which there are minimal medical provisions. Many struggle to gain a diagnosis, around 60% of those who do are discharged on the same day with no offer of help. Many feel lost, alone, confused & unsure of how the condition will affect them & their family. This lack of information causes isolation & exclusion, children struggle to cope at school, families find it hard to manage and adults struggle to form relationships and find work.
Solution
Our Tourettes Action Helpdesk, staffed by people with personal experience, offers a vital lifeline for many individuals without access to any other support. Knowing they're not alone can be immensely reassuring. People can reach out with any questions, receiving comprehensive information about our services such as support groups, workshops and webinars, plus signposting to other resources. This empowers them to feel informed, supported, and part of a thriving Tourette’s community.